Despite the excitement of going on holiday, travelling can be a stressful experience for many people, especially those with a chronic illness.
In this post, we will share some useful tips and tricks for travelling with POTS or other forms of dysautonomia. First, we will look at pre-trip preparation and then how to make the most of your trip while you're away.
Preparation
Before you set off, a little research and preparation can go a long way. Being prepared can ensure your trip goes as smoothly as possible. Let's take a look at some things to consider before you start your journey.
Location: Whether it's a day trip or a week away, it's best to know a bit about where you are going. The first thing to consider is your accommodation; are you looking for a hotel, Airbnb, or camp site?
Things you should look out for include:
The parking availability
Stairs
Air conditioning if you are going away in the summer.
Distance from local attractions you might want to visit.
Plan plenty of options: Having a variety of activities planned that account for both good and bad health days can be very reassuring; it's great to plan bigger days out where you will be more active while also having a backup plan in case of unexpected down days.
Hydration: In the days leading up to your trip, increasing your hydration will put your body in the best possible condition before you start your journey.
Food Prep: Bringing a few meals with you can save a trip to the shops while you are away, leaving you with more energy for the fun stuff. This can also come in handy if you feel worn-out during your trip, giving you a chance to recharge.
Useful items to take with you:
Hydration tablets: These will help you maintain your blood pressure throughout the day.
Camping stool: Consider bringing a camping stool if the location you're planning to visit may have limited opportunities to stop and rest.
Small bag: Using a smaller bag can save on weight, making walking less strenuous. These can carry extra medication in case you have a flare-up, as well as a small packed lunch.
Water bottles: I usually bring a large bottle to keep in the car and a smaller one for when I'm out and about.
Handheld fans: These can also be a great option to keep yourself cool during the summer, as heat is a common trigger for people with POTS.
Medication: It's important to make sure you have plenty of medication to last the trip. This could also include things like ibuprofen, for example, if you often get a tight chest.
Mobility aids: The use of physical aids such as wheelchairs and mobility scooters can help to increase your mobility and independence. Alternatively, the use of electric bikes can be a great option for those who feel uncomfortable using wheelchairs or mobility scooters.
While you are away
Once you've arrived, using these tips and tricks will help you avoid unwanted symptoms and make the most of your trip.
Continue your regular self-care routine:
While you are away, it's best to not forget your regular self-care routines. Making sure you drink before getting up in the morning, and maintain hydration during the day is even more important than normal, as you will likely be more active during your trip.
Getting enough sleep is also important for people suffering with many forms of dysautonomia; continuing your sleep routine will help your body stay in rhythm and well rested.
Also, continuing meditation and breathing exercises is a great way to calm your nervous system after busy days out.
Pace yourself: When you are away, taking things slowly can pay off in the long run. Whether it's making sure to stop and rest while walking or planning rest days during your trip, this can prevent burnout and save you from straining yourself during your holiday.
Eat small meals: After eating a large meal, lots of our blood is redirected to the stomach to aid in digestion, which can cause a rise in unwanted symptoms. Therefore, it is recommended to eat several smaller meals throughout the day rather than two or three large ones.
Controlling Temperature:
Wear light-coloured, loose-fitting clothing and avoid strenuous activities midday when the temperature is at its hottest.
When outside, carrying a small portable fan can keep you cool while on the go; they can also be useful while travelling by car or on public transport.
Using a mist spray or a cool towel around your neck can also be used to keep cool while outside.
Bring a friend: Since 2021, the number of people travelling alone has doubled to 23%, but there are many positives to bringing a friend or family member with you on your travels. A travel buddy can help lower the physical strain during your trip and offer support when needed.
Enjoy the Journey and Celebrate Your Victories
Lastly, remember to enjoy the journey and celebrate your victories, no matter how small. Travelling with dysautonomia is a testament to your resilience and adaptability. Take pride in conquering challenges and creating memorable experiences that showcase your strength.
Managing symptoms of dysautonomia
There are many types of dysautonomia, and there's no quick fix, but with some lifestyle adjustments things can get easier. Click the image above for some useful tips and tricks to help manage and keep unwanted symptoms at bay.
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