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Tips for Managing Post-Exertional Malaise

What is Post-exertional Malaise (PEM)?

Post-exertional malaise is a worsening of symptoms after exercise, triggered by ordinary activities that healthy people can tolerate. PEM is a hallmark symptom of ME/CFS and is common in long covid. The crash caused by PEM can happen instantly, or take days to appear, with 12–48 hours being most common.

 

Tips for Managing Post-Exertional Malaise


Keep a diary- With some symptoms taking days to appear, keeping a record of your activities and health can help you identify your triggers. With this information, you can make the adjustments you need to minimise your symptoms.


Make accommodations- For example, using a stool while cooking can alleviate the strain from standing for long periods of time. Camping stools are great if you are going somewhere that may not have many places to rest. If you know heat triggers your symptoms, taking a handheld fan out with you can also help lower the strain on your body.


Pace yourself- Pacing yourself is one of the most important adjustments you can make for many chronic illnesses. Taking things slowly can pay off in the long run, helping to stop burnout. This could mean planning places to stop and rest while out, or separating out your tasks so you don't do too much in one day.


Prioritise rest- When PEM does occur, it is often helpful to rest in a dark, quiet room. While resting, avoiding screens and other forms of stimulation can help to calm your nervous system. Many people with chronic illnesses often struggle with sleep or feel less rested when they wake up, so creating good sleeping habits can give your body the rest it needs.


Stress management- Many chronic illnesses are believed to be worsened by stress. Managing your stress may help you reduce chemicals like cortisol, a chemical known to make PEM worse, as well as interrupt sleep. Your body works best and is more resilient when you're relaxed. Some ways to combat stress are:

  • Learning to say "no" and limiting your commitments

  • Meditation, breathwork, and mindfulness techniques

  • Yoga, if you're able to tolerate the activity without triggering PEM

  • Delegating or asking for help with stressful tasks


Practice self-care- Everything on this list so far is a form self-care. Another important part of self-care is listening to your body. Stopping to have a break when you start feeling strained and not pushing through things can help to stop burnout; practising this is a form of self care that anyone with a chronic illness can benefit from.

 

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