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  • Dashwood Mausoleum

    W Wycombe Hl Rd, High Wycombe HP14 3AH Location The Dashwood Mausoleum is located at the top of West Wycombe Hill, in Buckinghamshire, England. The Mausoleum is situated behind St Lawrence Church , which dates back to the 14th century, although it has been remodelled many times throughout its history. Wycombe Hill is a part of the Chiltern Hills, an Area of Outstanding Natural Beauty . History Inside Dashwood Mausoleum The Dashwood Mausoleum was built in 1765, on the site of an Iron Age Hill Fort. It houses the urns containing the ashes of the Dashwood family. In 1774, one of the members of the Hell Fire Club, Paul Whitehead, left Sir Francis Dashwood his heart. After his funeral, which included cannons being shot out the side of the mausoleum, his heart was placed in an urn in the Mausoleum. The heart used to be passed around by visiting tour groups until an Australian soldier stole it in 1829. It has been missing ever since. The ghost of Paul Whitehead has been seen in many spots in the village, including the caves where the original empty urn is now kept. Click here to learn more about the Hellfire Club and its history. Parking There is a free large car park at the top of West Wycombe Hill. From there, you can enjoy a beautiful view of the surrounding Chiltern Hills (AONB). Please note that the car park has a vehicle height limit of 2 meters. Hilltop car park, with lots of potholes Accessibility There is a just over 100-metre walk from the car park to the mausoleum, which takes you either through the church grounds or around an outer path. The paths are a bit bumpy with some small slopes. The church is accessible for wheelchair users, but the paths to the mausoleum may be too uneven. There is a bench when you reach the front of the mausoleum. During good weather, the hill is a popular place for picnics, with plenty of places to sit around the hillside and a view over High Wycombe. Conclusion Overall, this location has a lot to offer, with great views and a rich history. It's ideal for visitors who struggle to walk long distances, but unfortunately may not be the best for wheelchair users. For more info, visit- St Lawrence Church Hellfire Club West Wycombe Park, Village and Hill Path through church grounds

  • Accessible Hobbies: E-Bikes

    When living with a chronic illness, trying new things can be daunting, especially when it comes to finding a new hobby. In our "Accessible Hobbies" series, we will explore a variety of hobbies that are suitable for people living with long-term health conditions. In this blog post, we will explore the positive effects of cycling and share some tips and tricks to make it as accessible as possible. Why are hobbies important? Research shows that people who regularly take part in hobbies feel less stressed and show fewer signs of depression. This is important for everyone, especially those living with a long-term illness. No matter your passions, interests, or physical ability, there is a hobby for everyone. The most important thing is that it's fun and meaningful to you. Why should you try an e-bike? Spending time outdoors can do wonders for your mental health. Studies show that regular access to green spaces not only lowers the risk of depression but also enhances sleep quality and concentration. E-bikes could offer that extra bit of support you need to get outdoors. Traditional pedal bikes are often too strenuous for people living with chronic illnesses, but e-bikes can help to keep any exercise at a tolerable level. This is important for people living with limitations, as physical activity has been shown to be 1.5 times more effective than counselling or medications when improving one's mental health. Using an e-bike, riders can reclaim a sense of independence and access places that would typically be too far to walk to on foot. This can be particularly useful for younger people who may feel uncomfortable using physical aids such as mobility scooters. If you take to cycling, you could find a local cycling group. These groups can provide support and help you meet new people who share similar interests. Accessibility With the use of pedal assist or throttle control, riders can control amount of exercise and keep it at a level that's right for them. Many individuals with POTS, chronic fatigue, and other chronic conditions often worry about walking too far and potentially feeling stranded after overexerting themselves. E-bikes provide a solution, as riders can rely on the bike's motor to return home safely, giving them peace of mind during their outings. Ways to make cycling more accessible: It's important to pace yourself when you're first getting started. On your first ride, just use the throttle and avoid pedaling. This will help you assess how your body responds to being upright and balancing for long periods of time. Over your first few rides, gradually increase the distance you travel to see how much exercise your body can tolerate. This will help you avoid burnout and find a comfortable pace that's right for you. It’s important to consider the terrain where you’ll be riding. Choosing the right bike for your environment can greatly enhance your experience and comfort level. Buyers guide Before you purchase your first e-bike, there are a few things you'll need to know so you can find the one that's right for you. A few things to look out for: Power: In England, e-bikes are restricted to 250w motors, which makes it challenging for them to climb hills without some extra pedaling. However, you can find more powerful options available for purchase online if you are willing to bend the rules. There have recently been  proposed changes to the government regulation  to raise the motor limit to 500w. If you live outside the UK/EU, there are several common wattage options for e-bike motors, including 250 watts, 350 watts, 500 watts, and 750 watts. Higher wattage offers more support for uphill climbs and high-speed travel. Size: There are e-bikes of all shapes and sizes. If you plan on travelling with a bike in your car, you may want to opt for a foldable option. Alternatively, larger bikes may offer bigger batteries or improved comfort and stability. Weight: E-bikes are heavy due to their large batteries. If you plan on lifting the bike into your car, make sure it's not too heavy before making your purchase. Pedal assist and Throttle: There are two main ways an e-bike is powered: pedal assist and throttle. Pedal assist is self-explanatory; as you pedal, the bike's motor will provide additional power, making the riding experience easier. This is typically adjustable, allowing you to select the level of assistance that's right for you. Bikes with a throttle can be powered without pedalling, letting the motor do all the work. This can be ideal for people with more debilitating symptoms. Most bikes that use a throttle will also have the option of pedal assist. Use: Before you purchase a bike, consider how and where you will be using it. Does it need to be portable and fit into a vehicle? Or are you looking for something with off-road tires and suspension? There's a wide variety of options, many with crossover features, so don't be afraid to look around for a while before you find one that's right for you. Click here for my review of the Fiido D3 Pro Mini Final note I hope after checking out this blog, readers will feel inspired to pick up a new hobby or rekindle an old one from the past. It's important to remember that even though you are living with limitations, they create a unique space to find joy in the small things. Those limitations might just help you stumble upon a new passion you never would have discovered otherwise. My Experience: Riding an e-bike with Dysautonomia Since my diagnosis of post-COVID dysautonomia in 2021, finding ways to get outside and exercise has been difficult. After looking online, I realised an e-bike could help me go further without straining myself or needing to rely on a wheelchair. To read about my blog post about riding an e-bike with dysautonomia click the image above.

  • How to Prevent Flare-Ups in POTS/Dysautonomia

    Living with a chronic illness can be challenging, especially when it comes to managing symptoms and avoiding flare-ups. If you're living with a form of autonomic dysfunction, prioritising your health and well-being is essential. What is dysautonomia? Before delving in, it's essential to grasp the nature of dysautonomia. Dysautonomia is an umbrella term for health conditions related to the autonomic nervous system . The term "autonomic" means ”self-governing,” which means it controls things you don't have to think about. This covers a wide range of bodily functions, such as breathing, digestion, heart rate, blood pressure, body temperature, sweating, and much more. Avoiding Flare-Ups in POTS/Dysautonomia Whether you are newly diagnosed or have been living with POTS/Dysautonomia for a long time, following these tips can help you manage the symptoms and take control of your health and well-being. Prioritise rest Rest is vital for everyone, but it becomes particularly crucial for those with chronic illnesses. Sleep disorders are commonly experienced by individuals with autonomic dysfunction. To promote good sleep hygiene, establish a nighttime routine, avoid screens before bed, and incorporate relaxation techniques. For more details on sleep hygiene, Click Here .   When a flare-up occurs, resting in a dark, quiet room can be beneficial. During this time, avoiding screens and other forms of stimulation can help calm your nervous system. Pace yourself Whether you are doing housework or spending time outdoors, pacing y ourself is key. Taking your time can help prevent fatigue and burnout, ultimately minimising long-term symptoms associated with overexertion. For example, when cleaning, make a plan to work in sections and small bursts, or even spread the task over multiple days. Likewise, p acing yourself during social occasions and giving yourself time to recover is equally important. Connecting in alternative ways, such as video calls and online messaging, can help keep you connected while taking less of a physical strain. Keep a diary Keeping a record of your activities and health can help you identify your triggers when symptoms do appear. It is common for symptoms to appear a day or two after exercise. With this information, you can make the adjustments you need to minimise your symptoms. Make accommodations After identifying triggers, consider making simple adjustments to relieve strain on your body. For example, using a stool while cooking can ease the pressure of standing for extended periods. If you’re in an environment with limited seating, portable camping stools can be a great solution. If heat worsens your symptoms, carrying a handheld fan can help regulate your body temperature. Stress management Stress is known to exacerbate many chronic illnesses. Effectively managing stress may help reduce cortisol levels, which can worsen post-exertional malaise (PEM) and disrupt sleep. Your body functions best and is more resilient when you’re relaxed. Strategies to combat stress include: Learning to say "no" and limiting commitments Practicing meditation, breathwork, and mindfulness techniques Engaging in yoga, if you are able to do so without triggering PEM Delegating or asking for help with demanding tasks Eating Healthy and Staying Hydrated After eating a large meal, a lot of our blood is redirected to the stomach to aid in digestion, which can trigger unwanted symptoms. Therefore, it is recommended to eat several smaller meals throughout the day, rather than two or three large ones. Another crucial element of self-care for people living with dysautonomia is staying well-hydrated, especially for those dealing with blood pressure-related conditions like POTS. Adults are generally advised to drink about 3 litres of fluid daily to maintain adequate hydration levels. This can be supplemented by incorporating more hydrating foods into your diet, such as custard, cream, yogurt, ice cream, sorbet, ice pops, ice lollies, slushies, jelly, soup, gravy, and sauces. Hydration tablets  can also be a useful way to maximise the hydration you receive while drinking. Medication There are many lifestyle changes that help to control dysautonomia symptoms, but seeing a doctor is very important. A doctor can diagnose you and offer medication to help manage your illness. It's usually a combination of lifestyle changes and medication that will help balance symptoms of dysautonomia. Conclusion Living with a chronic illness, especially a condition like autonomic dysfunction, can be tough. It’s important to put your health and well-being first if you want to manage symptoms and keep flare-ups at bay. By getting a good understanding of dysautonomia and embracing strategies like prioritising rest, pacing your activities, keeping a diary of your triggers, making simple adjustments in your daily routines, managing stress, eating well, and staying hydrated, you can take charge of your condition. Remember, everyone’s journey is different, so what works for someone else might not work for you. Stay curious and be willing to test out new strategies to see what fits your lifestyle best. With a little patience and self-care, you can navigate the ups and downs of dysautonomia more easily. Dysautonomia: Heat intolerance Heat intolerance is a common trigger associated with many forms of  dysautonomia . Click the image above to learn about the symptoms and how to treat them.

  • Chinon CA-4: Classic Camera Review

    The Chinon CA-4 is a 35mm film camera that was first introduced in the early 1980s. Designed with amateur photographers in mind, the CA-4 operates in aperture priority mode, making it accessible for those new to photography. Today, the Chinon CA-4 is a lesser-known camera from the film era, with more popular alternatives including the Olympus OM10 and the Canon AE-1 . In this classic camera review, we will look at what makes the CA-4 great and take a look at how it compares with its more recognisable contemporaries. A Brief History Chinon, originally started by the Japanese firm Chinon Industries, was established in 1948 and became notable for producing a wide range of photographic equipment, including film cameras, projectors, and other optical devices. The Chinon CE series of cameras, introduced in the 1960s, gained popularity for their reliability and affordability. They were single-lens reflex (SLR) cameras that used interchangeable lenses, with a target market of amateur photographers. There isn't much information online about the release of the Chinon CA-4, but it is believed to be released in 1980 . By the 90s, Chinon, like many other manufacturers of film cameras, faced significant challenges due to the rapid advancement in digital photography. Chinon attempted to innovate but couldn't keep pace with some of the larger brands. During this time, Chinon diversified its product lines, moving into areas such as digital compact cameras and optical devices. By around 1997, the company had effectively exited the camera market, although the brand still exists in some capacity for other products, including medical imaging devices and industrial equipment. Aesthetics and Build Quality The CA-4 is a reasonable looking camera with a dark, minimalist design that won't stand out in a crowd. It does, however, have all the characteristics a film newbie would enjoy, such as large plastic dials for the ISO and mode selector. The body's design is simple with no frills, making it less recognisable than others in its class. The CA-4 is made of a mixture of metal and plastic and feels fairly solid. The exterior is made of plastic and does not have the highest quality finish. The CA-4 doesn't offer weather sealing, so users should avoid using them in rainy conditions. The Chinon may not be the most eye-catching camera, but it aids in its affordability, making it an excellent opportunity for savvy shoppers looking for a great deal. Layout and Controls Starting at the left of the top plate, you have the iso selector and film rewind lever. On the right, you have the mode selector, shutter button, film advance lever, and frame counter. At the centre of the top plate is the hot shoe. On the front of the camera body, you'll find the lens mount with a depth of field preview button and self-timer with a light indicator. The battery chamber is located at the bottom of the camera; here you will also find the tripod socket and film release button. When looking through the viewfinder, the shutter speed is indicated by a red LED on the left side of the frame. The interface is clear and easy to understand. The red LED will appear when the shutter is half pressed, and turns off after about 30 seconds to save battery. Since the CA-4 is an aperture priority camera, the only controls you will use while shooting will be the aperture and focus rings, which are both located on the interchangeable lenses. This is ideal for casual photographers and people just getting started with photography. Features and specifications Shutter speeds: 1 to 1/1000 sec. on automatic, "B", "X" (X = 1/100 sec.) Meter: TTL, centre weighted Body Dimensions: 135.5 (W) x 86.0 (H) x 50.5 (D) mm Body Weight: 455 grams Lens Mount: Chinon Universal bayonet mount ASA Range: 25 - 3200 Hot shoe: type with X sync Power Source: Three 1.5V silver oxide G13 batteries (S-76 type) Handling Shooting with the CA-4 is easy, with simple controls and a very satisfying shutter sound. You are free to take photos without the distraction of manual settings, allowing more time for composition and spur-of-the-moment photos. Reliability Chinon cameras are generally considered reliable, especially for their time. However, like any mechanical device, it can experience issues, particularly as it ages. Mechanical degradation due to age, especially in cameras that have been stored without use for extended periods, is a factor here. Since the CA-4 is a lesser-known model, finding parts and repair services will be a challenge and probably not worth the price, as they can be found for so little on sites like ebay. Most cameras of the CA-4's age could probably do with a CLA, but with a little care and regular use, they should remain reliable for many years to come. Price You can usually expect prices to be around £20 to £50, depending on the condition and the included lens. While some listings can be as high as £100 or more, you should avoid spending this much, as there are better alternatives available at that price. Be sure to only use highly rated sellers when looking on sites like eBay, or even better, buy one from a used camera shop with a warranty. Before buying a Chinon CA-4, consider looking at other cameras in a similar price range. For £50 to £100, you might find an Olympus OM-10 or OM-20. These cameras offer a great selection of lenses and use the same aperture priority modes. Other alternatives include the Canon AE-1, Nikon EM, and Pentax K1000. Conclusion In conclusion, the Chinon CA-4 is a solid choice for amateur photographers looking to explore the world of film photography without breaking the bank. While it may not stand out in terms of aesthetics or brand popularity compared to other options like the Olympus OM-10 or Canon AE-1, its user-friendly auto mode makes it accessible for beginners. Overall, the camera's reliability and ease of use, along with its affordability in the second-hand market, provide a great starting point for those venturing into film.

  • Accessible Hobbies: Terrarium Building

    When living with a chronic illness, trying new things can be daunting, especially when it comes to finding a new hobby. In our "Accessible Hobbies" series, we will explore a variety of hobbies that are suitable for people living with long-term health conditions. In this blog post, we will explore the benefits of terrarium building and share some tips and tricks to make it as accessible as possible. Why are hobbies important? Research shows that people who regularly partake in hobbies feel less stressed and show fewer signs of depression. This is important for everyone, especially those living with a long-term illness. No matter your passions, interests, or physical ability, there is a hobby for everyone. The most important thing is that it's fun and meaningful to you. Why terrariums? Studies show that gardening is beneficial to both mental and physical health. If you find traditional gardening too physically challenging or too large of a commitment, building a terrarium can offer a more manageable way to enjoy and connect with nature. Terrariums are not just a relaxing activity; they also provide a rewarding sense of accomplishment when completed. A completed project can serve as a reminder of your potential, even during periods of poor health or confinement at home. Building a terrarium doesn't have to be a solo hobby; it's an accessible activity that can be enjoyed with friends and family, regardless of their physical ability. This shared activity can lead to meaningful bonding moments and shared joy. Additionally, terrariums make wonderful gifts. They last longer than typical flowers and require less maintenance, lasting for months or even years. Their unique, personalised nature also adds a thoughtful touch to your gift-giving, as well as being fairly affordable. Accessibility Terrarium building is accessible to people of all abilities and backgrounds. You don't need a garden or a lot of space, and once they are set up, they require little to no maintenance. Their small size means there’s no heavy lifting involved, and you can build them while sitting down, making it an ideal hobby for those living with illnesses such as chronic fatigue or POTS. Ways to adapt terrarium building to make it more accessible: Before you begin, gather all the items you’ll need and keep them within reach. By doing this, you won’t have to keep getting up or need to stretch too far. Pre-prepared kits are available online; these can be useful for beginners as you'll have everything you need and won't have to spend as much time sourcing items. One downside to this method is the higher price. Make sure you are in a comfortable position with lots of support to avoid unnecessary strain. Give yourself permission to take breaks, allowing you to work at your own pace. What you'll need Here's a list of items you'll need to build a terrarium: Basic Supplies: Container: A glass jar , bowl, or terrarium-specific container. Potting Soil: A well-draining potting mix suitable for the plants you choose. Plants: Small plants, such as succulents, air plants, or miniature ferns. Click here for a list of the best plants to go in your terrarium. Gravel or Small Rocks: For drainage at the bottom of the container. Activated Charcoal: Optional, but helps to prevent odours and keeps the terrarium fresh. Decorative Stones or Pebbles: For aesthetics and to enhance the look of your terrarium. Tools: Small Trowel or Spoon: For scooping soil. Tweezers or Long-Handled Tongs : To position plants and small decorations. Watering Can or Spray Bottle : For watering the plants. Scissors: For trimming plants if necessary. Gloves: Optional, for keeping your hands clean during assembly. Optional Decor: Figurines or Miniatures: To personalise your terrarium. Moss: For a natural, decorative touch. Sand: For layers or decoration in the terrarium. Make sure you have everything ready before you start your project to make the process smooth and enjoyable! Instructions Prepare the Container: Clean the container with warm, soapy water and rinse thoroughly. Make sure it’s clear and free of residues. Add Drainage Layer: Pour a layer of gravel or small rocks at the bottom of the container. This helps with drainage and prevents root rot. Aim for about 1-2 inches, depending on the size of your container. Add Activated Charcoal: Add a thin layer of activated charcoal on top of the gravel. This helps absorb odours and keeps the soil fresh. Add Potting Soil: Pour a layer of potting soil over the charcoal and gravel. Make it about 2-4 inches deep so there’s enough space for the plants' roots. Plant Your Plants: Carefully remove the plants from their pots, gently loosening the roots if needed. Use tweezers or long-handled tongs to position them in the soil. Arrange them as desired, leaving space between them for growth. Add Decorative Elements: If you like, add decorative stones, pebbles, or figurines to enhance the appearance of your terrarium. This step is about personalising your creation! Water the Plants: Lightly water the plants using a watering can or spray bottle. Be careful not to overwater; a little moisture goes a long way, especially in a closed container. Seal: If your terrarium has a lid, you can place it on top. Closed terrariums require less frequent watering, while open ones need more regular attention. Place the Terrarium: Set your terrarium in a chosen spot and monitor the light and moisture levels. Maintain Your Terrarium: Check the moisture level regularly. If there's too much condensation on the glass, remove it with a piece of kitchen roll. Final note I hope that after checking out this blog, readers will feel inspired to pick up a new hobby, or rekindle an old one from the past. It's important to remember that even though you are living with limitations, they create a unique space to find joy in the small things. Those limitations might just help you stumble upon a new passion you never would have discovered otherwise. For more accessible hobby ideas, Click Here .

  • Accessible Hobbies: Arts and Crafts

    When living with a chronic illness, trying new things can be daunting, especially when it comes to finding a new hobby. In our "Accessible Hobbies" series, we will explore a variety of hobbies that are suitable for people living with long-term health conditions. In this blog post, we will explore the benefits of arts and crafts and share some tips and tricks to make them as accessible as possible. Why are hobbies important? Research shows that people who regularly take part in hobbies feel less stressed and show fewer signs of depression. This is important for everyone, especially those living with a long-term illness. No matter your passions, interests, or physical ability, there is a hobby for everyone. The most important thing is that it's fun and meaningful to you. Benefits of Arts and Crafts Taking part in arts and crafts can help relieve stress and reduce anxiety . Activities like baking, knitting, and gardening are simple ways of practicing self-care and can improve well-being in the long run. Engaging in arts and crafts can also enhance your focus and concentration . As you immerse yourself in a project, your mind can shift away from everyday worries, helping you to be more present in the moment. Other mental benefits include improved emotional processing and communication skills. Having a creative hobby is a great way to connect with others. Whether you’re painting with friends or making something for a loved one, arts and crafts are an affordable way to spend quality time with those around you. Another benefit of creative hobbies is the sense of achievement when a piece is finished. A completed project can serve as a great reminder of your ability to learn and grow, even when you are not feeling your best or when you are stuck at home. This sense of achievement can be a wonderful way to boost self-confidence. List of accessible arts and crafts There's a wide variety of arts and crafts to try; some possible options include: Painting : Use acrylics, watercolors, or oils to create artworks on canvas or paper. Drawing : Try sketching with pencils, charcoal, or pastels. Collage Making : Cut and assemble images from magazines, newspapers, or personal photographs. Origami : Fold paper into decorative shapes and figures. Knitting or Crocheting : Create garments, accessories, or home decor with yarn. Scrapbooking : Compile memories, photos, and memorabilia into creatively designed albums. DIY Jewellery : Use beads, wire, and other materials to craft unique jewellery pieces. Card Making : Design and create personalised greeting cards for various occasions. Sewing : Make clothing, bags, or home textiles using fabric and a sewing machine or hand-sewing techniques. Embroidery or Cross-Stitch : Stitch designs onto fabric to create art or embellishments. Pottery or Clay Sculpting : Use air-dry clay or polymer clay to create sculptures or functional items. Woodworking : Build small items like birdhouses, shelves, or decorative pieces. Candle Making : Create custom candles using wax, wicks, and scents. Soap Making : Use melt-and-pour bases or cold process methods to make handmade soap. Mosaic Art : Use tiles, glass, or paper to create decorative patterns or images. Nature Crafts : Collect leaves, flowers, or stones and make art or decor pieces. Baking Art : Decorate cookies or cakes creatively using icing or fondant. Printmaking : Experiment with stamps or homemade printing techniques for unique designs. Accessibility Most arts and crafts can be done from the comfort of your home, or even from bed, making them accessible to everyone, regardless of physical ability. Arts and crafts are also very flexible, allowing you to take part at your own pace. This makes it a perfect option for people living with conditions like Chronic Fatigue Syndrome (CFS) as you can start and stop whenever it feels right for you. Ways to adapt crafting activities to make them more accessible: Use a supportive chair with good back support or work at a table that is at the right height for you. Ensure everything you need is within easy reach to avoid straining. If you're crafting in bed, consider using a lap desk or tray to create a stable and comfortable workspace. Instead of trying to complete a project in one sitting, break it down into manageable steps; you could do this by setting a timer. Consider collaborating with friends and family. This can provide support and shared energy. You can take part in tasks according to everyone's strengths and limits. Getting Started Before getting started, there are a few things to consider: Cost of Entry: One major benefit of arts and crafts is the low cost of entry. You can expect to spend between £10 and £50 to get started, depending on your chosen medium. Shopping for sales or secondhand items can help you save even more. Tutorials: With an almost unlimited number of online tutorials, there will never be a shortage of inspiration and opportunities to learn. You can also find lots of art and craft books either online or at a local library. Prep: Once you know what you want to create, the final step is preparation. After finding some inspiration, you can gather your art supplies from local shops or order them online, so you don’t have to leave the house. Final note I hope after checking out this blog, readers will feel inspired to pick up a new creative hobby or rekindle an old one from the past. It's important to remember that even though you are living with limitations, they create a unique space to find joy in the small things. Those limitations might just help you stumble upon a new passion you never would have discovered otherwise.

  • New Year's Resolutions: Living Well with Chronic Illness

    Embracing life with a chronic illness presents its challenges, but setting New Year's resolutions can be an exciting opportunity for growth! Focusing on small, achievable goals that prioritise self-care and well-being can bring joy and positivity as you nurture your health journey. New Year's resolutions for people living with a chronic illness: Do your best: Promise yourself to do your best each day, knowing that "your best" may look different from day to day. Sometimes, your best might mean being productive or spending time with friends. Other days, it could simply mean focusing on basic self-care. Self-care days : Dedicate one day a week to relaxation and rejuvenation. Take a relaxing bath, read a book, or practice yoga to reduce stress and improve overall well-being. Sleep goals : Prioritise getting at least 8 hours of sleep per night to keep your body in the best shape possible. Social connections : Schedule regular video calls or outings with friends and family to keep connected in the new year. You could also participate in online forums or support groups to connect with others who understand what you're going through. Limit social media: Consider taking a break from social media or setting a time limit on your phone. While it's great to connect with friends and family, scrolling through posts from old colleagues or schoolmates is unlikely to make you feel good about yourself. Remember, people only share their highlights online, and comparing yourself to these sets unrealistic expectations. Nutrition and hydration : Focus on nourishing your body with balanced, healthy meals and plenty of water. Consider meal planning and looking online for diets that will aid your health condition. Advocacy : Take small steps towards advocating for yourself, such as educating healthcare providers about your condition or sharing your story online. Celebrate small wins : Acknowledge and celebrate small victories along the way, even if they seem insignificant to others. Every challenge we face is relative to our own unique circumstances. Learn new skills : Take online courses or attend a workshop related to a hobby or passion of yours. This will help keep your mind engaged and provide a sense of accomplishment. Click this link for a list of accessible hobbies Gratitude practice : Keep a gratitude journal or share three things you're thankful for each day with a friend or family member. Gratitude can help you feel more positive, reduce stress, and improve your overall mental health. Seek support : Don't be afraid to ask for help when you need it. Reach out to loved ones, online communities, or support groups for assistance. You could also schedule regular therapy sessions to prioritise mental health and reduce stress this new year. Follow your heart: Living with a chronic illness can be very taxing. Sometimes sitting down and reflecting on what's most important to you can be useful when choosing what direction to take this new year. Let your true core values guide your decision-making. Reminder Remember, living with a chronic illness is not about setting unrealistic goals or pushing yourself too hard. It's about making small, achievable changes that prioritise your well-being and quality of life. When setting your New Year's resolutions, be sure to: Make them specific, measurable, and achievable Break down large goals into smaller, manageable tasks Focus on progress over perfection Celebrate small wins along the way Be kind to yourself if you encounter setbacks By prioritising self-care and setting realistic goals, you can take control of your chronic illness journey and make meaningful progress towards a healthier, happier year ahead!

  • Alexandra Gardens

    Address : 2 Alma Rd, Windsor SL4 3HU Location Alexandra Gardens were opened by Princess Christian, Queen Victoria's daughter, on the 15th of July 1902. The gardens run alongside the River Thames and offer views of Windsor Castle, which is located half a mile away. With a bandstand and plenty of grassed areas, the gardens are perfect for picnics. This family-friendly destination boasts a small amusement park, a mini-golf course, and a cafe, making it a ideal spot for visitors of all ages, particularly parents seeking a fun and relaxing day out with their little ones. Live music is performed at the bandstand on weekends during the summer months. There are also seasonal events held throughout the year, such as the Royal Windsor Wheel and Windsor on Ice. What's There? At Alexandra Gardens, you will find: Open green spaces Plentiful seating Bandstand Edwards Amusements - small funfair with rides suitable for small children. Mini-Golf Extreme Motion Cafe Next to the gardens, you will find the Sydney Camm Memorial with a replica of his Hurricane fighter aircraft. Walking further west along the riverside path, past Edwards Coffee House , there's Baths Island & Pleasure Grounds , another ideal picnic spot. Crossing Barry Ave, which runs between the gardens and the River Thames, you will find a small cafe with a view over the River Thames. The Diamond Jubilee Water Fountains are located at the eastern end of the gardens, across Goswell Road. Parking Alexandra Gardens Car Park is large, with 198 spaces, including three for blue badge holders . Parking Prices:  9am-9pm Up to 1 hour – £2.30 1 to 2 hours – £4.60 2 to 3 hours – £7.00 3 to 4 hours – £9.30 4 to 5 hours – £14.70 Over 5 hours – £18.60 P ayment can be made by cash, credit/debit card, or by RingGo (Location Code: 62401) Parking is free for Blue Badge holders. There's also roadside pay and display parking along Barry Ave, which runs between Alexandra Gardens and the River Thames. Accessibility Alexandra Gardens are accessible for visitors who struggle to walk long distances, with frequent benches every 20-50 metres. The garden is about 300 metres in length. The main car park is located next to the mini-golf and amusements, but it is on the opposite side of the park's bandstand and fountains. Parking on Barry Ave may offer shorter walking distances to the centre of the park while also being closer to the river. The paths around the park are accessible for wheelchair and mobility scooter users, with smooth and level surfaces. Entering the gardens from the main car park is accessible for wheelchair users, with a dropped curb next to the blue badge parking spaces. The gardens can be accessed by steps at multiple points along Barry Ave, about every 50 metres. There is one ramped entrance on Barry Ave, located opposite the bandstand. The main entrance on the eastern side of the gardens is also wheelchair accessible. The fountains are accessible for all visitors, with no steps and plenty of seating. The there are also benches along Barry Ave and the riverside path towards the Sydney Camm Memorial and Baths Island & Pleasure Grounds . Conclusion In conclusion, Alexandra Gardens is a beautiful and accessible green space, offering stunning views of Windsor Castle and a range of attractions for visitors of all ages. From the bandstand and live music, to the mini golf and amusements, there's something for everyone to enjoy. With its smooth and level paths, frequent benches, and wheelchair-accessible entrances and facilities, Alexandra Gardens is an ideal destination for people of all ages and abilities. Whether you're looking for a relaxing picnic spot, an exciting day out with the kids, or simply a peaceful stroll along the river, Alexandra Gardens is a must-visit destination in Windsor. Path from the Riverside Cafe to Baths Island Steps from Barry Ave Windsor Castle from Baths Island & Pleasure Grounds, click the image above to learn for about the islands accessibility.

  • Eynsford Castle

    Address : Eynsford DA4 0AA Location Eynsford is a charming town in Kent, rich in history and surrounded by beautiful countryside. The first recorded mention of the village dates back to 864. It boasts many listed buildings of significant historical and conservation importance, as well as traditional country pubs. Its castle is located just off of the High Street and backs on to the River Darent. History Eynsford Castle, built between 1085 and 1087 by William de Eynsford, is one of England's most intact Norman castles. In 1130, its defenses were upgraded, and a large stone hall was added in the inner bailey. The de Eynsford family owned the castle until their male line ended in 1261. The castle was ransacked in the 14th century and fell into disrepair. In the 18th century, the Hart-Dyke family used it for hunting kennels and stables. Restoration began in 1897, with efforts increasing after 1948 when the Ministry of Works took over. Today, Eynsford Castle is managed by English Heritage and is open to the public. Ghost Sighting In 2018, there was a reported ghost sighting at the castle. Tabloids reported that a photo taken at the castle captured the ghost of a monk in the background. Since then, various paranormal investigators have visited the site. What's There? A large portion of the outer walls of Eynsford Castle remain intact, as well as parts of the inner structures. As you explore the grounds, you'll find informative boards that detail the history and former uses of various rooms. There is plenty of space inside the castle walls and in the surrounding area, making it a great spot to stop for lunch. While the castle itself lacks onsite facilities, it is conveniently located in the heart of Eynsford, offering a wide array of dining options and shops just a short walk away. Parking There's free on site parking next to the castle. There are no disabled parking spaces. Accessibility With the close proximity of the car park and the small size of the castle, this location is ideal for visitors who struggle to walk long distances. The castle has ramp access leading into the building. However, the grassy surfaces may be difficult for some visitors to navigate. There are some small sections accessed by stairs but all the information boards are visible from ground level. Unfortunately, there are no benches or toilets at this location. Conclusion Eynsford Castle, with its manageable size and convenient parking, is a wonderful destination for history enthusiasts, especially those with mobility challenges. Its picturesque surroundings provide an inviting atmosphere, ideal for leisurely strolls. During my visit, there were visitors walking their dogs around the outer wall, making it a great place to stop if you're traveling with a dog. If you're looking for a relaxing spot to stop for lunch while exploring the historical town of Eynsford, this castle is the perfect setting. Stairs to outer wall

  • Causes of dysautonomia

    What is dysautonomia? Dysautonomia is an umbrella term for health conditions related to the autonomic nervous system . The term "autonomic" means ”self-governing,” which means it controls things you don't have to think about. This covers a wide range of bodily functions, such as breathing, digestion, heart rate, blood pressure, body temperature, sweating, and much more. Some of the most common forms include POTS, orthostatic hypotension, vasovagal syncope and autonomic dysreflexia. What Causes Dysautonomia? Autonomic dysfunction can be caused by both primary and secondary factors. Primary causes include genetic or degenerative illnesses, while secondary causes may be due to injury, infection, or environmental factors. While some people with a form of dysautonomia can trace their illness to a single cause, often it can be a culmination of many factors. In this blog, post we'll take a look at some of the most common. Genetics Some people are born with a predisposition for dysautonomia. Inherited conditions, such as Familial Dysautonomia, affect the development of the autonomic and sensory nervous systems. There is also a correlation between hypermobility and dysautonomia . However, people from all backgrounds can have a higher likelihood of developing various forms of dysautonomia due to family history of illness and their genetics. Infections Some infections can lead to autonomic changes. Recent research suggests that long COVID is a form of dysautonomia, with a worsening of symptoms while standing and physical exertion. Other infectious causes of dysautonomia include: HIV, Lyme disease, tetanus. Toni Bernhard, author of " How to be Sick " describes her illness beginning with a flu she caught while on holiday in Paris. Autoimmune diseases Several autoimmune conditions can cause dysautonomia, including: multiple sclerosis lupus Sjögren disease Neurological diseases Neurological diseases, such as Parkinson’s disease and other degenerative conditions, can cause autonomic dysfunction. Some of the dysautonomia symptoms from Parkinson's included heat intolerance and blood pressure issues. Injuries Traumatic brain injuries, including concussions, can result in dysautonomia with symptoms such as changes in heart rate. Trauma Just as with physical trauma, emotional trauma may also lead to dysautonomia. Your ANS can be divided into the sympathetic and parasympathetic nervous systems, which work together to help you prepare for and respond to stress; trauma can cause an imbalance in these systems. The book " The Body Keeps the Score " by Bessel van der Kolk offers insight to the importance of the mind and body connection. Diabetes Diabetes may damage the nerves that regulate your internal organs, specifically from high glucose levels. This condition is called autonomic neuropathy, and it can cause various symptoms depending in which internal organ systems are affected. Toxins Working in environments with toxic substances, such as lead or poisons can lead to autonomic dysfunction. 16-73% of chronic alcohol abusers suffer from autonomic dysfunction. Cancer Cancerous tumours can affect your brain or spinal cord, which may lead to autonomic dysfunction. A tumour near your hypothalamus, pituitary gland, or brainstem is especially likely to disrupt the ANS functions of these structures. Medications Some medications, such as chemotherapy drugs, may lead to dysautonomia. Several medications might also worsen orthostatic hypotension, such as: diuretics vasodilators some calcium channel blockers To find out about the process of getting a dysautonomia diagnosis Click Here

  • Dysautonomia - The Most Common Medical Condition You've Never Heard Of

    What is Dysautonomia? Dysautonomia is an umbrella term for health conditions related to the autonomic nervous system . The term "autonomic" means ”self-governing,” which means it controls things you don't have to think about. This covers a wide range of bodily functions, such as breathing, digestion, heart rate, blood pressure, body temperature, sweating, and much more. Some of the most common forms include POTS, orthostatic hypotension, vasovagal syncope and autonomic dysreflexia. How many people have a form of dysautonomia? Dysautonomia is not rare. Over 70 million people worldwide live with various forms of the condition. People of any age, gender or race can be impacted. There is no cure for any form of dysautonomia at this time, but there are plenty of lifestyle changes and treatments that can help control the symptoms. Despite the high prevalence of dysautonomia, most patients take years to get diagnosed due to a lack of awareness amongst the public and within the medical profession. Most common forms of Dysautonomia Postural Orthostatic Tachycardia Syndrome (P OTS) - estimated to impact 1 out of 100 teenagers and, including adult patients, impacted an estimated 3 million Americans before COVID-19. Recent research shows that the number of POTS patients is now estimated to impact at least 6 million Americans since the pandemic began. POTS can cause lightheadedness, fainting, tachycardia, chest pains, shortness of breath, GI upset, exercise intolerance, temperature sensitivity and more. Neurocardiogenic Syncope (NCS) - NCS is the most common form of dysautonomia, NCS impacts tens of millions of individuals worldwide. Many individuals with NCS have a mild case, with fainting spells once or twice in their lifetime. However, some individuals have severe NCS which results in fainting several times per day, which can lead to falls and injury. Individuals with moderate to severe NCS have difficulty engaging in work, school and social activities due to the frequent fainting attacks. Orthostatic hypotension means decreased blood pressure when changing positions from sitting or lying to standing. It occurs in about 6% of the population, according to the Dysautonomia Support Network . However, that number increases with age. It happens in about 20% of people over age 65, the organization says. Resources and information for people with Dysautonomia: https://my.clevelandclinic.org/health/diseases/6004-dysautonomia https://www.nhs.uk/conditions/postural-tachycardia-syndrome/ https://www.potsuk.org/ https://www.dysautonomiasupport.org/about/ For some tips on traveling with POTS/Dysautonomia, visit " Travelling with POTS or Dysautonomia-Tips and Tricks ." Accessible Locations Map UK The Complete Guide to Traveling with POTS/Dysautonomia Click the image above to learn some useful tips and trick on traveling with POTS/Dysautonomia.

  • Symptoms of dysautonomia

    What is dysautonomia? Dysautonomia is an umbrella term for health conditions related to the autonomic nervous system . The term "autonomic" means ”self-governing,” which means it controls things you don't have to think about. This covers a wide range of bodily functions, such as breathing, digestion, heart rate, blood pressure, body temperature, sweating, and much more. Some of the most common forms include POTS, orthostatic hypotension, vasovagal syncope and autonomic dysreflexia. Symptoms While every form of dysautonomia is different, in this list we will include some of the most common symptoms: Feeling dizzy or fainting: Feeling dizzy or fainting is a common symptom of many forms of dysautono mia. Dizziness can often be caused when the autonomic nervous system does not regulate blood pressure effectively. Abnormally fast or slow heart rate: Another common symptom of dysautonomia, especially POTS , is an abnormal change in heart rate when transitioning from laying down to standing up. Anxiety: People with autonomic autonomic dysfunction can be very sensitive to norepinephrine , which plays an important role in the body’s “fight-or-flight” response. In addition, the parasympathetic nervous system, which calms us, may not counteract rushes of hormones such as adrenaline. Fatigue: Feeling fatigued is a common feature of many chronic illnesses. Fatigue isn't just feeling tired; it's persistent and doesn’t go away with bed rest. This can be caused by the extra strain on the body, due to a dysregulated nervous system. Excessive sweating or not being able to sweat: Another sym ptom of dysautonomia is difficulty regulating your body's internal temperature, as well as heat intolerance. Breathlessness: Shortness of breath, or dyspnea, is a commonly reported symptom in dysautonomia patients.  One study indicates that at least half of dysautonomia patients experience shortness of breath. Feeling thirsty: Studies have also shown that some individuals with autonomic dysfunction can have a reduction in the amount of fluid volume in the body, called hypovolemia . Having trouble swallowing: Difficulty swallowing, also known as dysphagia , occurs in some people with many different autonomic nervous system disorders. Common causes of dysautonomic dysphagia include a stroke , head injury , or  dementia . Headaches: Frequent and long-lasting headaches are a common symptom of autonomic disorders as well as long COVID . Insomnia: Sleep disorders can be common in individuals with autonomic dysfunction. These can be caused by symptoms such as breathlessness and adrenaline surges; which can often be triggered by lying at certain angles. Also, s leep-promoting neurons found in the central autonomic network, which control sleep cycles, can be dysregulated. Nausea and diarrhea: Dysautonomia affects the autonomic nervous system’s signalling to the stomach, this can cause a condition called Gastroparesis . Vision problems: Your autonomic nervous system doesn 't involve your vision directly. However, it does manage the width of your pupils (re gulating how much light enters your eyes) and the muscles your eyes use to focus. A form of dysautonomia called "Familial Dysautonomia" can cause sight problems due to progressive damage to the optic nerve in the eyes.  Getting a Diagnosis Dysautonomia can be a challenge to diagnose, with many symptoms that may appear unrelated at first. A diagnosis normally comes when your doctor has ruled out other illnesses. For more information about the process of diagnosing dysautonomia Click Here To learn some useful tips and tricks on managing dysautonomia symptoms Click Here

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